My trip to Germany and a music festival success or not? What do u think? 😜

[Guest [su...]]

I am on my way home after being away from my comfort zone even to another country for almost one week.

To those who dont knows me;  I struggle really hard with severe sxs for 19 months now

I have been stucked at my home for 2 years. And hsve a awful mental wave right now.

This trip and vacation was the most difficult and hard thing I had ever done. It was a 9 hours trip with a mobile home to the south of Sweden. Then a night on a boat for 7 hours.  After arrived in Germany it was even a 2 hours ride to the festival. It was hard to be in the car for such a long time. My dr dp and visual sxs is driving me nuts!

 

Everything was unreal and really scary. The following days was to hide in the mobile home after 6 pm there was no escape from music that played really loud 24/7 non stop.  Way to much sensory overload. My inner electric feeling was brutal. I felt and was so disoriented, still are. It made me wanna scream. But any way I did it and is now 10 hours from home one the boat on Baltic Sea for 3 more hours. So, would I do it again? No. Not right now. I am way to sick. It was a lot of fear and I have cried so many tears. I Just wanted to go home.

 

But I did it for my husband. And he is happy. That's whats matters!

And I survived. 

[[Sa...]]

I would say a success! 

 

SaraSue 

[[pr...]]

Success! When you get home just take it easy and allow your CNS to calm down and you may find yourself stronger than before. You were very brave because i was afraid to take a 6 hour flight to my nephews graduation.

[Guest [so...]]

Absolutely success, you are so brave, be very very proud of yourself, I hope your husband is proud of you. I can barely make it through a one night concert with limited travel so don't sell yourself short. Celebrate your courageousness. You have won this particular battle!

[[de...]]

I vote success. 

 

You did it, and you learned many things. 

 

Always wanted to sail the Baltic. 

 

Dee

[[Ea...]]

Definitely a success. I truly believe that one of the only ways to desensitize ur CNS, is to expose it to situations like this & re-familiarize ur brain with this type of stimuli. That’s just how I personally feel, & although it may have been uncomfortable & hard to deal with, u made it through & know that it’s possible. This will definitely make it easier to deal with over time. Congrats, that was a wonderful thing to do for ur husband & u should feel good about it. Hope that u can bounce back from this quick. All the best

[[ca...]]

Great job! I very rarely get impressed, but I have read your threads and I did not expect this from you. Fantastic!

[[no...]]

I am on my way home after being away from my comfort zone even to another country for almost one week.

...This trip and vacation was the most difficult and hard thing I had ever done. It was a 9 hours trip with a mobile home to the south of Sweden. Then a night on a boat for 7 hours.  After arrived in Germany it was even a 2 hours ride to the festival. It was hard to be in the car for such a long time. My dr dp and visual sxs is driving me nuts!

 

Everything was unreal and really scary. The following days was to hide in the mobile home after 6 pm there was no escape from music that played really loud 24/7 non stop.  Way to much sensory overload. My inner electric feeling was brutal. I felt and was so disoriented, still are. It made me wanna scream. But any way I did it and is now 10 hours from home one the boat on Baltic Sea for 3 more hours. So, would I do it again? No. Not right now. I am way to sick. It was a lot of fear and I have cried so many tears. I Just wanted to go home.

 

But I did it for my husband. And he is happy. That's whats matters!

And I survived. 

 

success! GOOD JOB.  that was frikkin hard and you made it through. good use of your coping skills. and btw, your Hubby being happy is not all that matters. what you were able to do for him AND more importantly for yourself, to survive and even enjoy parts, that's what is significant. you were able to meet a challenge and you were inventive and resourceful. now rest your poor body n mind!

[[un...]]

So happy you made this work for you!

[[Sh...]]

Definitely a success. You proved to yourself that you can do it. I hope it gives you confidence for the future.

[[Ti...]]

I drove 14 hours to northen Sweden to climb Kebnekaise which took 9 hours to summit and descend. Was a nice trip to celebrate my 2 years mark on the day on Swedens highest mountain! I think we actually underestimate our stamina even thought we have severe fatige due to withdrawal.

[[bl...]]

There is nothing like exposure therapy !!!  When’s your next rock concert ?

[Guest [su...]]

I drove 14 hours to northen Sweden to climb Kebnekaise which took 9 hours to summit and descend. Was a nice trip to celebrate my 2 years mark on the day on Swedens highest mountain! I think we actually underestimate our stamina even thought we have severe fatige due to withdrawal.

Amazing! 👍

[Guest [su...]]

There is nothing like exposure therapy !!!  When’s your next rock concert ?

 

Haha well no rock for me. My sensitive brain almost collapsed after music 24/7 during 4 intense days. I couldn't join or enjoy the party. I was outside the mobile home all the time. I have so severe legs problems. When my brain was overloaded of stimuli I was so dizzy and my legs so jelly and floating. But as you mention it maybe I go on a 48 hours cruise in September. From Stockholm to Estonia. I can hide in the cabin lol. It was awful Blue. I cried a lot. Was super scared. But now...I cant understand I did it. Was away for a week almost. My worst symptom was my sensitive CNS. I still feel some off it. When I go outside. Inside less intense. In July when my husband is having his vacation we are going to Poland . No concerts just rest and see something new. I know now that it is possible. Even if I am really sick and have this sxs. It is hard. But my husband said ..- you did it. And you can live a life even if it is harder right now. He is right. I can do stuff but damn so hard it was.

 

I am really proud of this and much more that I had done the lasts months 

[Guest [su...]]

Great job! I very rarely get impressed, but I have read your threads and I did not expect this from you. Fantastic!

Thank you! More to come! 😜

[Guest [su...]]

Thank you to all that post so nice words to me it means a lot 

It is really intresting that I all ready had forgot how awful and hard it was to do this vacation..

I am already planning next trip. To Poland in July...

Even if I am so sick of all sxs I need to proceed...For now. Fake it until I make it.

[[Tr...]]

I'm still stuck on the couch. But when I listen to rock music, I get crazy and dance. And this is enough - BAM! Then I'm bedridden.

 

A concert, is a completely different level. You're so strong, and I admire you!

 

Hugs and love!

 

Anna