It NEVER Ends!

[[Ma...]]

Feel tired all the time, yesterday I slept alittle from 8am till 2pm then last night nothing so I been up again, also I have back aches and arm aches....basically today marks 3 long years since this horrible Insomnia BS started and I see no ends to it

 

I Feel tired up and about but when I get in bed trying to sleep I feel more awake, I don't get it......I went back to taking pamelor and I did over the past month took ativan 2 times when stuff got really bad, I shouldnt have again but I realized I was about a year off of it and nothing was improving, I expect to have this till Im dead, Ill probably die with this

 

Basically half the time if I dont sleep I go to the Next night meaning Im up 36 hours or so, if I still cant sleep sometimes by then I actually break down crying at that point so then I need something to take, usually then I take a Slep med like zzzquil and hope that it puts me out

 

Its odd it seems Im on a day and a half sleep routine then regular people

 

Also I keep thinking I still have Sporatic Fatal Insomnia because doctors have no clue how or why my Insomnia Started

[[Es...]]

I find Mag Citrate, L-Theanine, lemon balm and hops very helpful. You can buy all OTC. There are lots of antihistamine sleep aids on the market. Consult a benzo-wise pdoc. I’m quite satisfied with Phenergan syrup. Helps me with my Valium taper. Maybe you tapered Ativan too quickly. Ashton reccomends Phenergan 2 hrs before sleep. I actually drink up to 12,5 mg syrup a night. May cause depression. But no worse than a benzo.

 

Ashton on promethazine (Phenergan)

[[Ma...]]

I can try those but until just the past month I was off the ativan 11 months, should have been long enough for some improvement

[[Es...]]

Well, not necessarily. If you tapered too fast, your sxs may not fade away.

[[ne...]]

Estee is right. Please don't think about that Sporatic Fatal Insomnia, it's almost certain you don't have it. Doctor's generally are clueless hen it comes to benzo withdrawal, so I wouldn't place my faith in their opinion. 

 

You have my sincere sympathy, compassion, and empathy in regards to your suffering. Sounds horrific. Please hang on to hope, there are other Buddies here who went through similar experiences and have healed.

 

Hope you're getting some respite and rest soon.

xoxo

 

[[MT...]]

It took me much longer to make much progress than 11 months. That you're sleeping at all is a good sign. I concur about the phenergan. That was a sanity saver for me but my brain was so sleep resistant I required a higher dose. Early in my wd it took 75 mg for me to feel anything. As I got better 50 mg worked and now I will occasionally take 25-40 mg if it's been several very bad nights in a row. I know how hard it is to be patient and how easy it is to catastrophize about this very unnatural experience of being sleepless. I think it's worth doing all you can not to sleep during the day to help build sleep pressure at night. Hard to do but worth it.

[[Ba...]]

I find Mag Citrate, L-Theanine, lemon balm and hops very helpful. You can buy all OTC. There are lots of antihistamine sleep aids on the market. Consult a benzo-wise pdoc. I’m quite satisfied with Phenergan syrup. Helps me with my Valium taper. Maybe you tapered Ativan too quickly. Ashton reccomends Phenergan 2 hrs before sleep. I actually drink up to 12,5 mg syrup a night. May cause depression. But no worse than a benzo.

 

Ashton on promethazine (Phenergan)

 

what does 'nocte' mean in her listing there on phenergan?  You take just 12.5 mg/syrup per night?  Now if only I could find dr. to rx it...  so far, nothing...

 

[[Ma...]]

Every night I wake up constant, even if I take something and it seems I have nightmares every time I doze off which makes this so much FUN! Also I have a Pain swallowing on the right side of my throat now as well as muscle aches, oh boy 3 years later and shit dont get better it gets WORSE! As I said Probably the Sporatic Fatal Insonai kicking into high gear finally

[[mu...]]

Really doubt you have SFI!

 

I am almost 4 years into the start of my insomnia and still struggle to get consistent good sleep.  I will have good stretches of 6-7 hour nights followed by a week of 3-4 hour sleeps.  You would think by now things would have gotten all better but they have not and I have no reason or clue what causes the better nights vs what causes the worse nights.

 

You will get through it or you will learn better on how to cope with this.  I just let it be and live my life, yea I might be a little tired but typically I can just power through the day same as every other day.  A lot of it is just the mental aspect of everything.

 

 

[[ne...]]

Really doubt you have SFI!

 

I am almost 4 years into the start of my insomnia and still struggle to get consistent good sleep.  I will have good stretches of 6-7 hour nights followed by a week of 3-4 hour sleeps.  You would think by now things would have gotten all better but they have not and I have no reason or clue what causes the better nights vs what causes the worse nights.

 

You will get through it or you will learn better on how to cope with this.  I just let it be and live my life, yea I might be a little tired but typically I can just power through the day same as every other day.  A lot of it is just the mental aspect of everything.

 

This makes so much sense! 

[[Es...]]

Every night I wake up constant, even if I take something and it seems I have nightmares every time I doze off which makes this so much FUN! Also I have a Pain swallowing on the right side of my throat now as well as muscle aches, oh boy 3 years later and shit dont get better it gets WORSE! As I said Probably the Sporatic Fatal Insonai kicking into high gear finally

 

Yeah, I also thought I have it. Pdoc said I don’t. But they keep me on Valium. Wish I could taper it to 0-2 mg and stay on Phenergan only. I have severe neck and arm pain, cause of my neck discopathy. Valium helps with that and insomnia. But makes me feel like crap.

[[Rr...]]

Prozosin can b used for nightmares.