1 year out and this???

[[mo...]]

I was doing better. looks like  things was gradually getting better. then for a few days. its rough again. this is the third day. today being the roughest. what is going on?

 

[[be...]]

Yea join bonaventure, me and klungo. All about the same time and a tick backwards. I hear this is probably the last go around. I'm doing much better after a really tuff 2 weeks. Stay strong

[[mo...]]

really? I sure hopes so. this is crazy!!! I really thought I was doing better.

[[Kl...]]

I'm a little behind you at 11 months and a few days. I had a rough time at 10.5 to 11 and things have been much better, feeling close to normal this past 4 days. I hope i don't get hit again at 12 but yeah it sounds like that can happen and then it's home stretch for a majority of people. Best wishes and good luck!

[[Bu...]]

In the same boat and desperately hoping that this wave is the last go around for all of us.  Thanks for posting about this.

[[Hu...]]

Yeah trying to get answers is very hard isn't it? I guess not knowing is what keeps us going. I imagine if someone could tell me definitively how long I was going to be sick I might have given up and stayed in bed two years. Still amazes me that there are few scientific studies aren't being conducted! Take care. Hey bernerd I've seen your giraffe so many times and I just noticed. Is he looking through a plane window? Ha guess I'm coming out of my coma better than I thought! God bless

[[bo...]]

It really has been tough these last few weeks. I really had a lot of early symptoms like paranoia and extreme anxiety and the odd intrusive thought. Still got some anxiety so not sure I'm out of it yet but had a good day yesterday where I felt good. More like that please! Ticking off the days and chalking up some time. Glad your wave passed.

[[Si...]]

What are your symptoms at one year out?

[[mo...]]

mine? adrenaline surges.  uncomfortable.  is happening every day. but in the  night stops.

[[bl...]]

I'm a couple of weeks away from my 1 year CT anniversary and I was doing really well until a couple of days ago. I would say I was at 90-95% and functioning almost normally.  In fact, I remember saying to myself that if it doesn't get any better, I can live with this. Then I got hit big time. Every symptom revved up and I feel like I just went back 6 months!!! This is so discouraging and disappointing. I hope this is just the last big wave before healing for all of us in this time frame !

[[Kl...]]

I've had bad muscle pain come back in the mornings this past week. Very unpleasant.

[[lo...]]

I go through similar phases. was doing really good for the last couple days, started to feel joy (which left otherwise), and today back to wave.

what I noticed that the waves become more 'leveled' the longer I'm out. its just a hard cloud of a mix of anxiety and depression, but more stable and predictable.

i think this is the sensitivity phase or leaving 2 and going into 3

 

[[Kl...]]

After what was probably the best I've felt in a year yesterday to the worst I've felt in months. Sick most of the day, achy, fatigue, eye pain, feeling horrible other than an hour or two. How much longer is this crap going to go on. 11 months and almost 1 week.

[[lo...]]

Klungo; I suppose nobody will answer us how long, but I would assume that windows are a SIGN that things are starting to change.

 

[[Kl...]]

Klungo; I suppose nobody will answer us how long, but I would assume that windows are a SIGN that things are starting to change.

 

I really hope so, what I keep hearing..ive honestly had windows since then beginning. Admittedly never this good and this long. At this point, grit my teeth for 24 days and hope a year brings some relief. Let's hope tomorrow brings a better day...

[[lo...]]

I had shorter windows at the beginning too. Did you notice that your baseline improved? thats what I think is happening.

not very much, but  I can tell.

but whatever waves come....it seems to harder to manage the further out you are.....just tired of this.

hang on there.....no other choice....

[[Kl...]]

It is harder now than earlier. I keep thinking i felt better 2 months ago. I feel like the sx have been more intense lately, though I know that overall I was not better then. I think it's the feeling of doing this for a year and still not done. I can't wait for the day I feel good all the time again. I keep reading about 12-14 months being the average to start feeling really good so I guess we keep on going. If I don't have days like yesterday then it doesn't feel so daunting.

[[Ex...]]

I'm at 13 months. Things are better, but I got hit with depression, low level anxiety, siff neck, some chest tightness and breathing issues, yesterday I felt very uncomfortable. My emotions were blunted again yesterday, but things seems to be improving a little. I was feeling very close to normal, and then these symptoms came back, It's so frustrating. I'm still struggling a little today, but I'm praying this ends soon, for all of us.

[[Kl...]]

Sorry to hear that, but it sounds like you are so close. There are times I feel like that as well, but also feels never ending.

[[be...]]

I agree, baseline is better but now I'm a well person having some setbacks where as before I was a sick person with an occasional good day. So frustration is the order of the day.

[[Kl...]]

That's a big improvement then Bernerd. I still feel somewhat sick at times. If I can get consistently to the well part, I know I can handle it much better. When do you think we started to feel that way?

[[Ex...]]

I agree, baseline is better but now I'm a well person having some setbacks where as before I was a sick person with an occasional good day. So frustration is the order of the day.

 

Good way of putting it, I like that. That's so appropriate to how I feel.

[[be...]]

I've been pissed about the setbacks for about a month. I think that's when I made the shift. Today for example, woke with cortisol blow and have been beatin mercilessly all day. I'm sure it will let up soon but it feels like someone is ripping my scalp and face off, and a pressure headache. Fun fun fun

[[lo...]]

do you guys feel changes even during the day. today morning was bad, then it turned good (I was like wow), was really surprised since did expected whole day to go bad.

had 2-3 pretty decent hours, then boom, shit again.....8pm now and not having it

[[Kl...]]

Yeah changes a lot especially 9+ months. Today I woke up ok then hour of sickly then fantastic for 4  hours then every hour or two cycling between great and some waves. Overall feeling like in starting to get to a point of feeling fairly good more than not.

 

I've been pissed about the setbacks for about a month. I think that's when I made the shift. Today for example, woke with cortisol blow and have been beatin mercilessly all day. I'm sure it will let up soon but it feels like someone is ripping my scalp and face off, and a pressure headache. Fun fun fun

Seems that's the way it may be near the end. Fine tuning and things coming and going. After being sick for so long this is so much better but still shitty. It's that realization that it's almost over but you just don't know when. Frustrating! Hopefully not much longer my friend!