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Audiology/tinnitus clinic/other stuff


[Da...]

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I have an appointment with the audiology department next month to find out if I have any hearing loss, specially in my right ear as I am now struggling with conversations, listening to the TV and hearing things that are not there (not voices per se, more like extra words that I assume people say). For example me and S/O were having a bitch at each other the other day over hanging laundry outside, you know, every day average crap. I swore blind I heard him say 'yes mum!' quite loudly. He didn't say that, me assuming he did only made the heat of the moment even hotter.

 

If I am watching TV or trying to listen to something, I either miss it entirely or the constant ring in my right ear is louder than what I am trying to listen to.

 

Now I am at the point where I no longer believe all my health issues relate directly to Benzos. I have always had issues following conversations etc, but with the ringing on top, it's making life very difficult.

 

I also come from a VERY atopic family background as well. I am open to the possibility a lot more than Benzo withdrawal is at play here.

 

It's lovely to see so many of you are almost and even fully healed. I began my journey here through BW with so many others. I think for the most part, WD is almost over for me. A few classic sxs still linger a bit, but all my acute ones are now gone. Nausea, head pressure etc, all gone.

 

I think what I have now is the emergence of a neurological condition that was covered up by years of Benzo use. The Benzos suppressed it, now it's able to come out swinging.

 

As the acute sxs went away, I actually got more and more sick and tired. I cannot do any of the things I enjoy now. I cannot even stay up beyond 11pm. My day begins at 4am, it's a long, boring day for someone too unwell to get out of bed most of the time.

 

Thankfully I am able to get engrossed in things like movies. Benzo 'fog' that I had in acute no longer makes following stories a tiring effort. I love being able to watch and enjoy movies again. I watched Stephen King's Cell the other day, was weird, but I liked it.

 

I am still unable to read much. Mt eyes cannot follow text very well and it blurs, jumbles and moves. The doctor tells me this is probably related to this mystery condition. I am waiting on this appointment and the respiratory one and I am just going to ask, or better still beg, them to send me to neurology. It's not really going to work if they just keep cherry picking sxs and sending me here, there and everywhere.

 

The doctors surgery are very reluctant to keep prescribing me the Ventolin inhalers I need so many of. I have to book yet another review. I'm very frustrated about this issue. It' an inhaler for heaven's sake, not even really classed as a drug anymore. I cannot use any of the steroid preventers because they make me cough severely and cause all my sxs to worsen, including tinnitus and vibrating inside (they think this is also related to a neurological disorder), to get so much worse.

 

I already can't sleep most nights because of the constant high pitched noise in my right ear. I can't get to sleep in the first place, it's not staying asleep, it's getting to sleep that's the problem.

 

Has anyone else been to a tinnitus clinic, and if so what did they do?. That's if I can hold out till the middle of next month.

 

 

 

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Hi Dapple,

 

I am only 46 and have mild hearing loss that I got hearing aids for about a year ago. I started my taper in March and have been done since June 2nd. I got tinnitus about 6 weeks in to my taper. I see a tinnitus specialist that uses sound therapy done through the hearing aid to help the brain habituate. She has calmed my anxiety over the tinnitus. It is still there, but I can definitely live with it now. Best of luck to you!

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Have you ever tried to put a "white or grey noise" on your ears? Don't overtone the tinitus, just surround it. That is helping me to fall asleep. I am using the "my noise app " on my iPhone..
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I have bad tinnitus in my left ear due to hearing loss. The only way I can fall asleep is a combination of soft music plus white noise playing through an earbud. Otherwise my brain fixates on the tinnitus  and I get all stirred up and can't sleep. You need to have some other pleasant or neutral sound to draw the brain's attention away so it stops reacting to the noise like a threat to keep you up.
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I use white noise in the hearing aids as well as on a sound machine at night in my room. It makes sleeping fine. During the day I like to have music or something in the background so my brain does not focus on the tinnitus. I meet with a specialist on Monday. I will update then.
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