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Kindled? Where to go from here. Help!


[Me...]

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Please see my signature to see the mess doctors and hospitals put me through. I have been doctor directed to taper my K twice in a 8 week period. Both times too much too fast. First my original dose was 1mg twice daily. They tried cutting me by 1/4 mg which was fine for about 10 days til the SHTF and I had to reinstate. About 6-8 weeks after reinstated another doc tried cutting me by 1/8 mg and the exact same senerio occurred. I have been reinstated to 1 mg twice daily ( total 2 mg/ day) since Feb 2017. I have typically more waves than windows but as time passes the windows get much worse........to the point that my doc wants to add Latuda to help with my rumminating fears, obsessive worrying, paranoia of pills, foods and doctors and help improve my sleep.

Thoughts? Am I kindled? as I can actually have 2 straight weeks of windows before a wave hits and lasts for days or week. If kindled, does that means I will never stabilize first and should just start microtapering now? Any hope to stabilizing on K OR could this still be residual waves from the Xanax CT the hospital put me through for over 2 weeks before going to a different hospital where they first started the K? 

I'm frozen and don't know which way to move. I've heard some people on BB refute that Kindling even exists. Help, please!

Peace & windows

Mellowplease

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You sound like me. I can go almost 2 weeks with no symptoms, then BAM, weeks 3-8 are an utter sh*t show with me feeling like I'll be dead in days. (I'm not convinced I WON'T, even now!)

 

In my mind, it's several things. Your brain is trying to function with messed up receptors. It's coming back "online" if you will. Also, because your receptors don't have the benzo, they go kind of crazy. Because we're also not used to feeling effects of anxiety, we are hypersensitive to everything. Light, sound, stress, etc.

 

I do know that for me, this time coming off K has wrecked me for months. In the past, I recovered faster from a c/t off 2 mg of klonopin. (I don't recommend that, of course.)

 

The lower I got on K, the mental symptoms are improving, but I still am battling physical symptoms, including trouble breathing.

 

I think a micro taper may be a good idea. I managed to go from 2 mg down to .25 mg in 4 months cutting .25 mg at a time every 2-3 weeks, but in the end, it caught up with me.

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My suggestion is not to focus on the possibility of kindling. You will freak yourself out. Take each symptom as it comes and use a coping strategy. Kindled or not kindled doesn't change what you're dealing with. Do not psyche yourself out with worse case scenarios.
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Thank you fearful....I will just keep holding where I am until my body says it's ready to move forward....slowly.
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that isnt kindling.  I have kindling.  Mine originated from alcohol abuse.  same receptors. GABA.  kindling is after going through withdraws over and over they start getting worse each time you have them.  Tapering withdraws wont get you kindled.  You would have to go through cold turkey withdraws many times before you developed kindling.  I used to drink a half a gallon of vodka a day.  When I ran out of money I went through terrible withdraws including grand ma seizures, hallucinations, delirium tremens.  I did that over and over for years and became kindled.  you are just going through taper withdraws.  Kindling is use to losely on this site.  Most people who think they are, arent.  Again it would take multiple cold turkey withdraws to start developing it
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