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Posted

I'm almost 12 months out and not getting better.  :'(

still extremely bad anxiety all day and most nights

my head is hurting non stop. Feels like buzzing, burning,painful thingling, bugs crawling under my scalp, zapping, pressure, feels like bad toothache in my brain. Nerve pain on my scalp, muscle spasm on my scalp,

Bad neck pain

ears are buzzing and is getting more loud,

Inner vibration

Zero energy

Depression, crying a lot

Sleep is like one week good then weeks and weeks no sleep at all. Up every hr.

Almost 12 months out no window

I'm just crying with pain and don't see I will ever going to get better.

I'm loosing hope day by day. Doing everything  right, eating well walking, not taking any supplements and I'm not improving. Why? I asking this millio times myself. No answer.  :'(

 

 

Posted
I'm so sorry you are still going through these awful things. I have all those symptoms as well but I am only 6 weeks out and it's driving me crazy. I pray it doesn't persist so long and I hope you find relief soon as well. It is a terrible thing to go through. Try to remain hopeful relief could just be around the corner, from what I've been reading a lot of people start to see improvements at the stage you are at. All the best.
Posted
Thank you 76mom for your encouraging words. The problem is more farther I'm getting more hope I'm loosing. Before I was more hopeful, thinking I will be better slowly and by one year I will feel atlist somewhat better. Did not happen. Maybe only my anxiety severity is lessened a bit but is still bad very bad all day and most nights. Not seeing the light :'(
Posted

Thank you 76mom for your encouraging words. The problem is more farther I'm getting more hope I'm loosing. Before I was more hopeful, thinking I will be better slowly and by one year I will feel atlist somewhat better. Did not happen. Maybe only my anxiety severity is lessened a bit but is still bad very bad all day and most nights. Not seeing the light :'(

 

I'm sorry , I feel the same Vica . But we have to keep going . We have come so far . Let take one day at a time . It's hard but one day at a time we can handle that .  Hope you feel better soon . I'm not doing so well today either .

 

Tracy

Posted
Oh Tracy, thank you, for your kind words. I just don't know I want to live like this enymore. Is just to much suffering and I do not see the lights.  :'(
Posted

Oh Tracy, thank you, for you kind words. I just don't know I want to live like this enymore. Is just to much suffering and I do not see the lights.  :'(

 

I know I know . This is horrible but we hang on to those success stories , it will get better .

Posted

what do you do to help with your WD? Im just asking to know

 

Dont lose hope! you should be proud of what you did!

 

Keep going!

 

:thumbsup:

Posted
Today is 11 months for me. I too am miserable and get no relief. We have to somehow keep hope alive. Hopefully knowing that there are others gives you some strength.
Posted

It could be Remeron

I was thinking that. I see you taking too. How you feel on it? Did you able to taper while benzo withrawl?or you hang on for a wile.?

Vica

Posted

what do you do to help with your WD? Im just asking to know

 

Dont lose hope! you should be proud of what you did!

 

Keep going!

 

:thumbsup:

I'm taking remeron 2.5 mg. but very slowly coming off, maybe that's the problem. My brain not able to heal bc is in withrawl all the time.

I'm not taking anything else. Only hot baths helping and sometimes ice on my head. Bit some days is make it even worst. Loosing hope.

Thank you for carrying

Hugs

Posted

can you do exercice?

 

what about 5htp and healthy food?

 

Im saying that because thats what ive used

Posted

No I can't exercise, I do yoga once a week, and walk 2 x a day. ( I don't consider this exercise) but is better that nothing.

Can I use 5 htp even if I'm on remeron?

Vica

Posted

No I can't exercise, I do yoga once a week, and walk 2 x a day.

Can I use 5 htp even if I'm on remeron?

Vica

 

no, you cant, but if you will be off anytime, I advise you  :thumbsup:

Posted

No I can't exercise, I do yoga once a week, and walk 2 x a day.

Can I use 5 htp even if I'm on remeron?

Vica

 

no, you cant, but if you will be off anytime, I advise you  :thumbsup:

[/quote

Thank you. It can take one more year to come off 2.5 mg remeron or even more if I do it right. I don't know if I can last that long with this pain.

I feel so hopeless. My doctor give elavil today for my pain. Scared to take it.

Posted

I'm sorry for your pain!

 

 

Have you tried yoga and meditation?

Posted

I'm sorry for your pain!

 

 

Have you tried yoga and meditation?

Hi, yes I try to do yoga once a week but after the next day all my muscle hurts and is give me more anxiety. I do meditate every night for 1 and half hr in my bath. I try to do deep breathing and praying and praying. is give me some relief but as soon as I'm out moving and talking anxiety comes back. :-[

Thank you for carrying and take the time to help.

I'm so so tired f this pain and suffering. Is this pure hell where I'm now. :-[

Posted

I've just posted the very same thing. I'm so sorry you're feeling the same way. This is harder than anything I've ever had to face and I've faced a lot! Wishing you strength and acceptance, hope and healing.

 

Bo

Posted

I've just posted the very same thing. I'm so sorry you're feeling the same way. This is harder than anything I've ever had to face and I've faced a lot! Wishing you strength and acceptance, hope and healing.

 

Bo

Thank you Bo!

I alway thaught I'm a strong women and I can handle anything in life. Well not this time. I feel this is the first time in my life this going to break me.  :'(  I'm in this hell for 2 years now since I went on Clonazepam the first time. My life never the same since then, and now I would call it pure suffering and I'm living the worst nightmare what human being can handle. And I don't see the way out.

Thank you again for try to encourage me

GOd bless you and wishing a fast recovery for you

Vica

Posted

Everything you've said Vica is how I feel. I'm with you 100%. I wouldn't wish anyone - not even my worst enemy - to go through this. Will keep an eye out for your posts. Thank you and you're not alone.

 

Bo

Posted

Everything you've said Vica is how I feel. I'm with you 100%. I wouldn't wish anyone - not even my worst enemy - to go through this. Will keep an eye out for your posts. Thank you and you're not alone.

 

Bo

Love and healing to you and all the BB :smitten: :smitten: :smitten:

Posted

It could be Remeron

I was thinking that. I see you taking too. How you feel on it? Did you able to taper while benzo withrawl?or you hang on for a wile.?

Vica

I hated remeron the week I got on it. I noticed all kinds of side effects. Visual blur, weakness, heart rhythm problems, dry mouth, muscle twitches and spasms, and a sickness/fever. But I needed to sleep, and was already afraid of withdrawal so instead of quitting the very first thing I did was start this fast taper down from 3.75mg and hold around 0.3mg-0.5mg for about 2 months before jumping. I felt great for 1-2 weeks and then started having horrible insomnia. I needed to relieve the horrible insomnia, and anxiety and I was afraid I was in Remeron withdrawal, so in desperation for sleep I started all the way back at 4mg instead of just reinstating the 0.5mg. Plus Id has two rescue doses of Ambien. All the way back to square one. Oops. Now I'm down to 1mg again and I feel awful. I'm getting a good 6.5 hours of sleep but I'm still in horrible pain but that could be something else like my disease/antibiotics.

Posted

Hi Ali, thank you for writing back to me. This is a 3 th time for me on remeron. First Ct from 7.5 mg. second time fast taper from 5 mg. and now doing a slow taper but I'm so sick I don't know if I can cut anymore. Sleep is mostly ok but this burning pressure headache is killing me.

Do you have that too?

Thank you again to write back to me and wish you a very  fast recovery and healing

Hugs vica

Posted

Hi Vica,

 

I feel the same as you. I think I am in a partial window now but I am always having symptoms 24/7. I am still dealing with eye floaters, tinnitus, weird brain sensations, buzzing all over my body, BAD broken sleep, racing thoughts, looping music in my head, and more...all day, everyday. I wish this could all end soon... I don't see a light at all right now. I hope you see that light soon. We are getting through this together <3

Posted

I only felt better when I was off any chemical stuff. Took me five years in which I felt like dying. I can only tell you that you are still taking a chemical drug that has an impact on your weak nervous system. I don't know if you can get off it or if that would be ok at the moment, but you are still on a drug which CAN have an effect on how you feel.

I really know how hard it is to hold on, again and again, while normal people out there have no idea what suffering means. You never know what comes tomorrow. There is a chance that you will feel much better in 4 weeks, 4 months or even a year - so don't give up. From day to day, hour to hour, second to second. Try to enjoy something little every day. And don't forget: What if you are doing everything right??? We doubt anything when we are suffering, but we forget that the truth can also be that we are doing the right things and just have to wait a little bit longer (in my topic "do you love yourself" I wrote a new imagination training text - perhaps you wanna try it out)..

 

Here comes a hug!  :smitten:

Marigold

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