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Horrendous Tinnitus


[tn...]

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Hi All BB's,

 

Who has this sxs? How long have you had it?...did you get from benzo use...while tapering or upon finishing your taper?

Also is it possible to get tinnitus in tolerance withdrawl and how do you deal with this horrible sx...i have had it for 16 months while still taking clonazepam i got it on November 2015 and it has gotten so much worse since i begun my taper on July 2016...how do you deal with it? Has it gone away for anyone?...i have it in my left ear and occasionally in my right from time to time...it when from a loud ringing to a loud hissing?..please any suggestions or anything that can lower the sound it's driving me insane please any help for this sx from hell would be appreciated..thank you and i pray everyone is having a break from all this hell that we are going thru..tnt

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Yes! I have it, A LOT of us do!

 

Mine gets worse after a cut & was really bad after I jumped. I also had it in tolerance.

 

Mine can be ringing, hissing but also I keep thinking someone has left a phone off the hook somewhere.

 

It's so irritating. Mine comes & goes. Have definitely had it all day today.

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Hey twinkle1705,

 

How long have you had it...and how do you deal with it...it drives me insane..i can't deal with this...it seems worse when lying down..how about you..is it worse when lying down...it's hell never having a second of peace..i forgot what true silence feels like.

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tnt815, I am sorry you are suffering through withdrawal with tinnitus. It seems many do.  Mine started with tapering clonazepam. It's gotten worse.  I am sitting in a quiet house and I can't hear the ringing/buzzing atm. At night it is worse, even though I run a fan to drown out anything that might wake me up or keep me awake, IF I do manage to go to sleep.

Some say that tinnitus should eventually go away, as our brains begin to heal. In the meantime, do your best to have background noise to give you some relief and hang in there. Things will get better.

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Thank nightengale,

 

I'm sorry for you too...for having to endure the horrible symptom..it's like a nightmare you can't wake up from

I've had it way before my taper started..i think i got it in

tolerance withdrawl...I've had it for 16 months and not a

moment of silence...it's devastating to say the least nothing

I try works whitenoise, fan, etc...I hope it goes away as our brain heals..but I'm losing hope after this long..how long have you had yours NG?

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Tinnitus complaints seem to be on the rise. I can't believe just loud mien gets. It's like a searing hissing/ringing. It can be hell. Klonopin/Clonazepam seem to be the biggest offender. I'm doing a hold now but I don't know if I have to be completely off of klonopin for the tinnitus to stop. I know the lower I go the louder the tinnitus gets.

I try not to treat it with any supplements anymore. I tried kratom recently and now I'm going through another withdrawal from that.

My tinnitus started in 1991. Started on Xanax. Then switched over to klonopin. Started a taper about two years ago. I have been EVERYWHERE and have tried EVERYTHING.  The only thing that helps is masking.

 

This site has about the best masking sounds and their all for free.

 

https://mynoise.net/NoiseMachines/neuromodulationTonesGenerator.php

https://mynoise.net 

I like Aural Scan under 'Brain waves.' They have a calibration screen that you can use to calibrate some of the sounds and save it as your personal file on their website. Free to use on their website all you want. They have apps for your phone. For about $2.00 you can download a 1/2 hour mp3 file and pay for it with PayPal.

They do the same thing at a tinnitus neuromodulation clinic in England for around $6,000.00. Seriously. They make a sound tailored to your 'calibration tests' and have you listen to it for three or four months.

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Hi erniej,

 

First let me start off by saying congratulations on the birth of

your first grandchild...and regardless of the fact that you can't be a part of your grandchild life at this moment..God will grant you your wish and your daughter's will forgive and forget and all will be right. Know in your heart and soul that you will meet your grandchild and hold him/her? In your loving arms one day soon and that grandchild will feel your love and know what a wonderful and loving grandpa you are..that being said the horrible tinnitus...26 years for you my heart feels for you my friend...hopeful one day by the good grace of God Almighty..we will hear the sound of peace one day whether they invent something to cure all us tinnitus suffers or our ears heal themselves...i thank you for the website info and i will check it out..till we talk again...take care of youself my friend and ill pray for you to hold your grandchild in your loving arms and feel your heart fill with joy...you deserve nothing less GRANDPA  :thumbsup:

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Yes! I have it, A LOT of us do!

 

Mine gets worse after a cut & was really bad after I jumped. I also had it in tolerance.

 

Mine can be ringing, hissing but also I keep thinking someone has left a phone off the hook somewhere.

 

It's so irritating. Mine comes & goes. Have definitely had it all day today.

 

Tinnitus does not "comes & goes" I would not try to give people advice on Tinnitus, as it is a chronic condition that is permanent, and does not come and go. If yours comes and goes, I would suggest you have a very very very low grade ringing, which 98% of the population has if they concentrate hard enough in a silent environment. Believe me when I say, normal Tinnitus does not come and go.

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Hi All BB's,

 

Who has this sxs? How long have you had it?...did you get from benzo use...while tapering or upon finishing your taper?

Also is it possible to get tinnitus in tolerance withdrawl and how do you deal with this horrible sx...i have had it for 16 months while still taking clonazepam i got it on November 2015 and it has gotten so much worse since i begun my taper on July 2016...how do you deal with it? Has it gone away for anyone?...i have it in my left ear and occasionally in my right from time to time...it when from a loud ringing to a loud hissing?..please any suggestions or anything that can lower the sound it's driving me insane please any help for this sx from hell would be appreciated..thank you and i pray everyone is having a break from all this hell that we are going thru..tnt

 

I am sorry to say, that Tinnitus is a permanent symptom, it does not "heal." Once Tinnitus has been triggered, it is irreversible. However, as you become less anxious and stressed after your benzo withdrawal has completed, and you spend more time concentrating on doing other things, then your perception of it will change and it should become less intrusive. Anyone on this board that says Tinnitus goes away as part of healing, does not understand what Tinnitus is.

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"Anyone on this board" WOW!

Well kallie, I guess all the people that have said that their tinnitus has gone away after they finished their taper must be delusional. And think of all the money that has been wasted on proven treatments like TRT. Must be more delusion. :thumbsup:

I wish you told me sooner before I spent thousands of dollars chasing a cure. I'm thinking of all the kratom I could have bought with the money I would have saved. :D

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"Anyone on this board" WOW!

Well kallie, I guess all the people that have said that their tinnitus has gone away after they finished their taper must be delusional. And think of all the money that has been wasted on proven treatments like TRT. Must be more delusion. :thumbsup:

I wish you told me sooner before I spent thousands of dollars chasing a cure. I'm thinking of all the kratom I could have bought with the money I would have saved. :D

 

TRT is a method used to habituate to the phantom noise that is Tinnitus.  It does NOT cause the Tinnitus to go away. 

 

Also, people that have said their Tinnitus has gone away, are people who have again habituated to a very low grade of Tinnitus.  I am not sure if you are aware of studies done in the past, but 98% of people can hear a ringing in their ears, if they are in a sound proof silent environment.  There is no doubt that that the additional stress and anxiety causes Tinnitus to spike, thus people with low grade Tinnitus might be aware of it for the first time, and then when their body manages to reach a better homeostasis, they manage to habituate again.

 

However, if you are part of the unlucky few like myself, where the c/t of Lorazepam was the trigger for medium to severe Tinnitus, it will not go away. It is a permanent symptom of the audio cortex creating a phantom sound.  There are many medications that can trigger Tinnitus.  Even just a very severe spike of Anxiety and Stress can cause Tinnitus. Taking an Aspirin can cause Tinnitus. Benzo's are just one of a host of things that can be the trigger.  It does NOT heal.  Tinnitus is a symptom, not a disease.

 

I would suggest you watch this Ted Video on what Tinnitus actually is, by Dr Josef Rauschecker:

 

 

 

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The volume of my tinnitus goes up and down with the waves. It's probably just like how im super sensitive to light and to the pain in my shins. I know it will go back down when I've healed to where it doesn't bother me but it'll probably never be gone
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Hey Kallie,

 

I already new it is a permanent condition...just didn't want to say it out right as to not create more anxiety and stress for those who suffer from this horrible symptom...to not have a moment of peace is frightening enough without understanding it's a permanent condition...look at erniej he has it for 26years mine has been present for 16 months so far..how about you how long so far?

 

Hi TNT815

 

Mine will be two years in May of this year.  The reason I posted here, is because when I first got Tinnitus, I spent so much time hoping it would go away, and reading misguided posts on this forum, that my entire focus shifted from living my life, to hoping Tinnitus would go away, thus focussing on Tinnitus the entire time.  This was incredibly unhealthy, and caused me a lot of distress.  The faster you accept Tinnitus for what it is, the faster you will heal psychologically, and start living your life again.  The only way you beat Tinnitus, is by focussing on doing things you enjoy.

 

Also, by actually having a very good understanding of what Tinnitus is, helps you to accept it.  As I said above, many things can cause Tinnitus, and generally speaking it is a combination of some form of hearing loss, usually in the 8000Hz to 20000Hz range, plus a trigger event, which can be something as simple as taking an Aspirin, to something more distressing like trying to withdraw from Benzo's.

 

Good luck Mate,

 

K.

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Well I just don't know.  But I have spoken to so many people that healed from it and Hyperacusis...I have both .  SoI still hold out hope while still trying to accept that I may have it for an indefinite period of time.  But I believe those who have healed from it whom I have spoken to...some who had it for five years plus and it went away to a point where they literally can't hear it anymore not just habituation.  Mine goes up and down so much that there have been times where it is almost completely gone and times where it is unbearable.  My hyperacusis mimics my tinnitus when one is bad or good the other is too.  So I'm not ruling anything out.
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Well I just don't know.  But I have spoken to so many people that healed from it and Hyperacusis...I have both .  SoI still hold out hope while still trying to accept that I may have it for an indefinite period of time.  But I believe those who have healed from it whom I have spoken to...some who had it for five years plus and it went away to a point where they literally can't hear it anymore not just habituation.  Mine goes up and down so much that there have been times where it is almost completely gone and times where it is unbearable.  My hyperacusis mimics my tinnitus when one is bad or good the other is too.  So I'm not ruling anything out.

 

Nothing wrong with having hope.

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Thanks Kallie I agree.  Also there are a lot of other symptoms of benzo withdrawal that are typically Or at least in a lot of cases permanent otherwise but heal when caused by benzos or other neurological events.  Things like DP/Dr and neuropathy.  I personally healed completely from extreme nightmarish dp/dr and constant neuropathy.  Oh and I have been off for 16 mo.  And didn't see this post was in the support during your taper page.
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If someone states that their tinnitus stopped how can you say it didn't? You can't tell what's going on inside another person's head. I had tinnitus since 1991. At times it would stop. An it stopped for a whole year. And it wasn't my imagination. It got worse when I got down to 1/2 my starting dose of Xanax. I think you're being a know-it-all by being insulting to the people that post on this board that their tinnitus has stopped after their taper. And I don't think your doom-and-gloom is helping others who are having a hard enough time as it is.

I wish someone who's tinnitus went away would post a reply.

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If someone states that their tinnitus stopped how can you say it didn't? You can't tell what's going on inside another person's head. I had tinnitus since 1991. At times it would stop. An it stopped for a whole year. And it wasn't my imagination. It got worse when I got down to 1/2 my starting dose of Xanax. I think you're being a know-it-all by being insulting to the people that post on this board that their tinnitus has stopped after their taper. And I don't think your doom-and-gloom is helping others who are having a hard enough time as it is.

I wish someone who's tinnitus went away would post a reply.

 

It is not about doom and gloom. It is about acceptance, and thus allowing yourself to move on Psychologically. Which is the only way to heal from chronic medium to severe Tinnitus. I am trying to prevent people from making the mistake I did. Since I realised that Tinnitus is a symptom, and not a disease, and that so many things can trigger it, it made me realise my brain is not damaged, and allowed me to move on with life. It is allowed me to stop blaming myself for taking the benzos that triggered the Tinnitus. As the fact is, that with my hearing loss at 14000HZ, I already had the gun loaded, I just needed a something to pull the trigger, and it happened to be benzo w/d, but could have been even an Aspirin down the road, or even just elevated anxiety. So my point is, blaming everything on benzos is a pretty unhealthy obsession. I am sorry to hear you are still suffering after all these years.

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Does anyone have it in one ear or both? and if one which side?..i had it in my left ear only for 16 months...the last couple of months it's been occasionally ringing in my right ear for a few seconds and stopping..and today i woke up after my usual 2 hrs of sleep a night...my right started ringing and hasn't stopped...GOD help me...1 ear was hell...now both...wth is going on...please someone explain why my other ear has now started to ring?...i can't take this S*** anymore!!!
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I have it in both. Left ear worse, sometimes the right ear stops. I met with an audiologist today and he said it can go away. They don't fully understand it, but said if you get it due to WD than chances are when your brain heals it will get better if not completely disappear. That's what he has experienced. I know this is s hot topic...
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Get yourself a white noise machine for sleeping at night. That's the reason or one of them that I started on this miserable path. Soon, you will forget. If you have an iPad there are many apps for white noise and get a wireless speaker. If you are lucky enough for it to pass, it will take time. Do not focus. It will make it louder.
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For what it's worth, my sister has tinnitus-it was actually her worst Lyme symptom and what ultimately caused us to get involved with the psychotropic drugs (trazodone for sleep)

 

Hers started in the left, then the right also, but the left was always the worst one.  Can't tell you what it sounds like.

 

Anyway, it was really bad during Lyme, so we had to drive her around w/the radio on a lot (maybe the combo of radio and car engine was a perfect mask for it)--and this was pre-drugs days.

 

Now, she wears headphones in the house and listens to CDs almost all day--she turns it low when watching shows.  Since the Ativan withdrawal, she had a strange reaction one day while checking her ear out and got really upset, so I kind of think that the withdrawal might have worsened or changed the tinnitus a bit.

 

From the Lyme forum, I learned that one person's neurologist recommended Niacin (flush free), Bioflavonoids (we do BioRutin), and Lysine for tinnitus.  In the past month or so, I've gotten a sense that it might be helping b/c she takes her headphones off more often and just leaves them sitting on her shoulders and does not seem that distressed. 

 

There's also something called Christopher's Ear Nerve (on iherb) that we looked into back when we were first dealing w/lyme-induced tinnitus. That stuff had good reviews, but has alcohol, so I think that's not good for when going through withdrawal.

 

She wears the headphones and falls asleep to music

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I was doing some research on gabapentin and tinnitus and a guy posted that for his tinnitus he takes 200MGs of Zoloft. 600MGs of Gabapentin and 12MGs daily of XANAX! Holy shit! That's a boat load of xanax.

If someone finds relief from severe tinnitus by having a noise machine running in the background it must be one pretty LOUD noise machine.

I told a doctor at Mass Eye and Ear that the volume of my tinnitus was so loud that I didn't think I cold tolerate it anymore. He said, "I have tinnitus, just go home and run a fan in the background." What the f**k? Fans don't even make any noise. Well, I suppose if you dug one out at the city dump... I run into doctors that have the "I have tinnitus, what are you complaining about attitude?" They don't have severe tinnitus. My tinnitus gets so loud that I can't even mask it out wearing headphones using sounds that were designed by a doctor of sound engineering for people with tinnitus.

I mentioned this before that his website is https://mynoise.net

Unless they can go through it people can't comprehend just loud it can get.

 

 

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Funny, but the sound I have coming from  my machine is exactly that! The sound of a fan! It's not the loudness of it, but in fact how deep the tonality the tone it is. So your doc is misinformed to an extent. But it would be different for everyone and depependeet on which kind of distortion they are hearing. I need I deep, low tone tone to stop the nonsense. Music doesn't do it. Also, a hint for anyone that gets intermittent high pitch tones or squeals. When you hear this just coming on, take your finger and press it over that little ear flap just over your ear canal for about 29 seconds and the squeal will subside. I promise. It's a good trick. It'll save listening to that awfulness for however long it lasts! Ive been dealing with this for about 5 years.i also know a good yoga maneuver that will at least temporarily stop it. You have to be able to really bend your back and neck. I ha neck surgery so can't do it tooo much but who knows if you keep doing it, it may have +++ results! It works while and it does other things too!
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