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Worse at 8.5 months?


[Ki...]

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I am at an all time low. I am at 8.5 months off and have never had worse head pain/pressure and muscle stiffness in my neck and shoulders. I am completely crippled.

 

I am not getting any better. I am only getting worse. I can do less than I could a couple of months ago. This is making no sense to me and is completely terrifying. It feels like I am dying.

 

Here's my symptom list.

 

Crazy head pain/pressure - skull being crushed my skull muscles

Left sided face tingling, pain and sensitivity - burning skin feeling?

Neck/shoulders locked up like concrete

Jaw tension and pain - left side worse this AM

Pressure behind eyes - eyes feel tired

Hands hurt

All over body pain

Vision in right eye blurry

Vision off - migrainey

Rash on head worse this AM

Hard to think - feel dumb

Memory is awful

Not easy to speak

Anti-social - just want to be alone

Anxiety/fear better than normal - not as panicked about what is wrong

Did not wake up with doomed/dark feelings

Pain extreme but mentally stronger about facing it that past few days

Depersonalization BAD - feels like I am not here or am in a dream

 

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I completely understand your frustration. I am at 9 months off and am having a major setback although it's my mental symptoms such as fear, negative thoughts and chronic fatigue which have returned with a vengance. I had previously returned to work and had even started socialising again and truly believed I was on the home stretch but for the past month or so these issues have come back and I haven't been to work in a week, I'm back on the couch unable to move locked back in my negative thoughts that things will never get better and maybe this is me for good. It seems so unbelievable that this can go on for so long and even after seeing progress we can go so far backwards, it's also difficult for those around us to see us getting well and then be so unwell again, I know it makes me feel like a hypochondriac which is frustrating trying to constantly defend your illness. If it makes you feel any better I had a consult with Dr. Jen many months ago when I was in a better place and she actually warned me to be prepared for a set back later in the stage of healing and that it was very common and would be very disheartening. Obviously it happens to many of us although knowing that doesn't lessen our suffering any more, it may help to reassure you you're not alone.
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Hello- I am also at 8 1/2 months and have suffered a major setback the last few days. I had thought I was finally on the road to being healed- felt so much better compared to earlier in the withdrawal but now the old symptoms are back really strongly- surges of anxiety, tingling hands and feet, panicky feeling, light headed feeling,  weepiness...thought I was past this. I am so discouraged so I totally get how you feel. Just hoping I will get back to the way I was feeling soon- that this is just a temporary setback but it is hard to take.
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Very sorry to hear you have both suffered setbacks. If I am being honest though, it alarms me that I haven't had any better days. I have been constantly miserably - mostly physically - and now am only worse. I feel as if I have been getting worse and worse with NO windows. All I need is a real window to confirm that this is w/d and to know that I will get through this.

 

I really don't know what to do anymore.

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Unfortunately all we have is to keep pushing forward and hope a window comes soon...because I know I have come too far to ever turn back. It must be tough though  to never have had a window...the windows are the only glimpses into a better life after benzos that I have had. They keep me going. Hopefully you will have one soon!
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Does diet really make or break this? I feel I get hit hard if I don't eat the same exact thing almost everyday. I'm 7 months out too and I'm stressed Bc my moms not well, and if I change any tiny thing in my diet, its over. I'll stay up hours with hunger. Is this normal?
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