Anybody 8+ months out with no window?

[[Vi...]]

Anybody who 8 + moths out and never had a window?

I don't know how long I can take this. I have so much pain and anxiety is all day and most night too.

Not able to work, everything is huge effort to do. I feel I'm slowly diying.

I feel like my head and scalp on fire and is never goes away. Still very bad anxiety and chest pain. Some morning 2% a bit better but most days I'm suffering so much I'm crying with pain. I had maybe 5-6 morning in 8 months when I felt a little better but the rest is bad days very bad days.

I'm loosing hope. Getting more and more depressed.

Please tell me is going to end

[[pa...]]

Yes, a week away from 10 months out and in the throes of a terrible wave.  Extreme anxiety.

[[lo...]]

Some of us don't get windows, that doesn't mean it doesn't get better, little by little.  Just hang on, things will change .... and I hope it won't be much longer .... and you may be lucky and get some really good windows. 

 

Take care

 

Fiona 

[[...]]

Hi Vica - i am sorry you are suffering the way you are. Do you have access to a good psych/counsellor who can help you with coping strategies? they might be able to help you find ways of distracting yourself from the situation. acceptance/mindfulness would be a very good approach.. it is REALLY important that we don't put our life on hold and that we live life as fully as we can despite the symptoms. in this way we can take the symptoms away from centre stage, give them less attention and thereby begin to reduce their power. i suggest social interaction, positive/pleasurable activities, new hobbies, work (even if just part time), relaxation (yoga, guided meditation), exercise, having a structured routine every day... if you can't afford a counsellor, there is always good quality self help online - let me know if you want any links

 

finally keep talking to people here - many have been where you are and have come through it.. patience and acceptance is the key 

 

PS - have you had a full physical exam? i see from your signature that the issues long before the drugs.. maybe it is this issue which is continuing now or at least making the withdrawal much worse? worth checking it out..

 

Anybody who 8 + moths out and never had a window?

I don't know how long I can take this. I have so much pain and anxiety is all day and most night too.

Not able to work, everything is huge effort to do. I feel I'm slowly diying.

I feel like my head and scalp on fire and is never goes away. Still very bad anxiety and chest pain. Some morning 2% a bit better but most days I'm suffering so much I'm crying with pain. I had maybe 5-6 morning in 8 months when I felt a little better but the rest is bad days very bad days.

I'm loosing hope. Getting more and more depressed.

Please tell me is going to end

[[ba...]]

I've had a few partial windows where I've felt maybe 10% above baseline.  That's about it.  It is incessant.

[[Sh...]]

I haven't really had windows either. I've just slowly been improving. I'd really like to have a clear window just to know what I'm holding on for cause I've completely forgotten.

[[Vi...]]

Thank you all for getting back to me. I feel not alone now withs this terrible withraw. Thank you all very much !

I thaught when I stoped benzo the second time, 3-4 months and I will be fine. Boy I was wrong. I have some improvement with anxiety and panick attacks but very small. This head and scalp burning pain is terrible. 24/7 I know some bb have this or had this symtoms too and get better after 12 months.

 

To  1966  thank you for your encouraging words. It means a lot more than I can say. i do go to CBT for 3 months now, and is helping but is more for depression, anxiety. They told me is not really for pain management. I do deep breathing when I feel my anxiety getting worst, meditat every day, relaxing in my bath1-2 hrs, try to go to gym but I get more head pain, I had full physical last year. MRI for my back and neck. Head is ok neck has sevire arthritis. Going for massage every week. Work is not possible yet. With this pain I can't even smile or concentrate. I loved my job but I worked with client and right now is not passable to work not even part time. Getting some days anxiety attacks many times and the pain so sevire I'm just crying with pain. If you have some self help link to recommend, yes I would appreciate it.

I'm here a lot and reading every day some success story. It give me hope. Acceptance is very hard when I'm in sevire pain. I can do that when my pain get less for  some hr.

I'm going trough perimenapose too probably is not helping for my situation. But I can eat now and my nausea is mostly gone. My doctor always tell me I'm healthy and  is all extreme high anxiety and I should go on anxiety pills. I'm thinking to go on depression pills maybe it would easy my head anxiety.

Thanks again to getting back to me and trying to help.

Sending hugs and healing 

[[...]]

Hi Vicca - sorry not sure i can help you much re your pain - except to suggest mindfulness meditations specific to pain - there will be lots on youtube. i hope the CBT is helping you to manage the anx/dep? it can't be easy going through the pain you are and some level of anx/dep is to be expected.. many people have had similar symptoms and have recovered in time.. i wouldn't be going on ad's if i were you - i am concerned that more medication might create other problems - they are not as bad as benzo's but can also be difficult to withdraw from so i am told/have read. but you need to decide what i right for you. hugs XOX

 

Thank you all for getting back to me. I feel not alone now withs this terrible withraw. Thank you all very much !

I thaught when I stoped benzo the second time, 3-4 months and I will be fine. Boy I was wrong. I have some improvement with anxiety and panick attacks but very small. This head and scalp burning pain is terrible. 24/7 I know some bb have this or had this symtoms too and get better after 12 months.

 

To  1966  thank you for your encouraging words. It means a lot more than I can say. i do go to CBT for 3 months now, and is helping but is more for depression, anxiety. They told me is not really for pain management. I do deep breathing when I feel my anxiety getting worst, meditat every day, relaxing in my bath1-2 hrs, try to go to gym but I get more head pain, I had full physical last year. MRI for my back and neck. Head is ok neck has sevire arthritis. Going for massage every week. Work is not possible yet. With this pain I can't even smile or concentrate. I loved my job but I worked with client and right now is not passable to work not even part time. Getting some days anxiety attacks many times and the pain so sevire I'm just crying with pain. If you have some self help link to recommend, yes I would appreciate it.

I'm here a lot and reading every day some success story. It give me hope. Acceptance is very hard when I'm in sevire pain. I can do that when my pain get less for  some hr.

I'm going trough perimenapose too probably is not helping for my situation. But I can eat now and my nausea is mostly gone. My doctor always tell me I'm healthy and  is all extreme high anxiety and I should go on anxiety pills. I'm thinking to go on depression pills maybe it would easy my head anxiety.

Thanks again to getting back to me and trying to help.

Sending hugs and healing 

[[of...]]

I haven't really had windows either. I've just slowly been improving. I'd really like to have a clear window just to know what I'm holding on for cause I've completely forgotten.

 

That rung true with me.. Ive completely forgotten.. Literally .. But i'm closer than ever to being wherever i completely lost touch with 

[Guest [We...]]

I'm a bit more than 10 months out and haven't had a true window either. My "windows" have simply been moments of relief where I've felt slightly better emotionally and a few of my physical symptoms have dampened down (but not disappeared completely).

 

From what I've gathered, it's nothing to worry about since not everyone heals with the window-wave pattern. Sometimes it bums me out, but then again, I think could be the lucky ones since we don't get thrown around by unexpected waves. I'd rather have gradual improvement (more closer to linear healing) than that window-wave madness.

[[Vi...]]

Hi weishaupt, thank you for your response. I do appreciate and is so comforting to know I'm not alone in this madness.

I feel a same us you. Few symtoms dampened down but every day is a struggle with this terrible burning thingling head and scalp pain. I sometimes think a would rather have a full clear window bc it would give me more hope. Like this I feel like most times I'm not even improving, but if I look back I can see some improvement on my good hrs here and there. Those time I'm hopeful.

Hopefully around 12 months we all going to see more improvement.

Thanks again letting me know I'm not alone.