Cause of inner vibrations and possible treatments?

[[Da...]]

I am after a bit more knowledge of the possible causes of this before I bring it up with the doctor. This symptom is now so bad for me I feel as if I am being tortured 24 hours a day and I feel it's now contributing to my constant lethargy because it's so draining. I have lost all desire to move because moving brings on severe physical sxs.

 

I don't have many intrusive thoughts or anxiety caused by WD, nor do I have any psychological WD sxs besides situationally caused depression/apathy. All I seem to be able to find on this one is that it's an anxiety symptom. Having dealt with anxiety all my life I know full well I have never, ever felt anything even close to this. I, like most human beings have felt the usual 'shaky' feelings from bouts of genuine anxiety, but again that is NOT like this. This is physical and seems neurological, not psychological. 99% of the time it's generalized, all through my body, but when I get my period, it moves  entirely into my lower abdominal area, exactly where my ovaries an uterus are and it feels as if those organs are full of both enraged hornets and boiling oil. WD has certainly found that weak spot for me and I now spend about 8 days a month too weak to even sit up, feeling sort of delirious from pain and super blood loss, (sorry for TMI) but it feels as if the floodgates of hell have opened in my pelvis. I got all these issues before WD but not for so long. I now get both severe period pain and what feels like neuropathic pain in my lower abdomen/pelvic area and I am almost certain it's somewhat related to this severe body buzzing thing.

 

I am very sick of being told it's 'mental', no, this is NOT mental. I don't have perceptual distortions, hallucinations (unless I foolishly go too long without sleep lol, but that is normal for anyone in that situation), I don't have DP/DR anymore (I did on Benzos, so this is how I know I am rid of that horrible symptom), I know who I am and I know what's real and what isn't. All my sxs are physical. I have or have had every physical symptom apart from a seizure.

 

It's not RLS either. I sometimes get that with fevers and it feels nothing like this. So again something I've felt before that is nothing like this. As I said I have no desire to move, it's exhausting, painful, and I am very weak and lethargic.

 

This feels physical, it feels organic, like all my nerves are constantly misfiring. My S/O has a nasty spinal condition called Cauda Equina Syndrome and he gets bouts of similar sensations from the damaged nerves in his lower back. This is the main reason he understands what's happening to me, and ironically, in a twisted way, what's keeping us from splitting up. He doesn't get told all is sxs are in his head and that he can't be helped. Nobody left him writhing in agony. Apparently pain is acceptable for an addict though.

 

What I'd like to know is, and what I will be asking the doctor, is are there any non-addictive, non psych medications that may help with this. I am also facing the problem of the addiction agency and the risk of false positive drug tests if I try any kind of medication, but I am so desperate and so ill now that I am willing to try something so long as it won't prevent my recovery from the Benzos, won't further upset my CNS and is not addictive. I'm not sure such a thing exists.

 

Does Gabapentin help any with this?. I've heard conflicting things about this med and I know it can be habit forming. The addiction agency has put in my medical notes that I shouldn't be prescribed any meds for nerve pain, pain relief etc, and Gabapentin is listed among those. I am in such a state now that I really don't care if something is addictive, if I can persuade the doctor, I will worry about tapering the lesser evil once I am a bit better with the Benzo mess.

 

 

[[me...]]

Hi,

 

Inner vibrations are very common during withdrawal, in fact they're a hallmark benzo withdrawal symptom.  I had them in my legs a lot, and occasionally all over, for months.  They are not harmful, and the only real cure I know of is TIME.  At four months off, it's early days yet for you. 

 

One day you'll wake up and realize you haven't had that symptom for awhile.  That's how these symptoms drop away, one by one.  Time is the healer.

 

[[Wi...]]

I know exactly what you mean. Although i had several other side effects the inner waves/vibration/electrical shit is/was horrible. To be honest i dont believe any meds will help this and possibly could make it worse. Benzo wd seems to focus on select areas of the body and put the minds focus on healing those select areas one at a time. So it would seem your mind/brain is focusing all its energy on the cns. I was on high doses of kpin and ativan for a couple years and im close to 8 months out and the waves/vibration are subsiding greatly now. Its felt like the inside of my body was made of lava lamp wax with electricity going thru it and i could always tell how bad the wd would be for the day by how severe the waves from within were. Its the absolute most fd up pysical symptom there is imo. The only physical symptom that compares is from a harcore opiate wd but that only lasts a few days whereas the benzo wd lasts for months.It almost seemed like the entire wd revolved around the vibrational waves. It amplifies any other ailments you may have as well. It feels like an unknown vius ravaging your insides. But you gotta remember that it is benzo wd and it will go away. Mine let up around the 6-7 month mark as did all my sxs. Hope yours noticeably gets better soon.

[[Pl...]]

I know exactly what you mean. Although i had several other side effects the inner waves/vibration/electrical shit is/was horrible. To be honest i dont believe any meds will help this and possibly could make it worse. Benzo wd seems to focus on select areas of the body and put the minds focus on healing those select areas one at a time. So it would seem your mind/brain is focusing all its energy on the cns. I was on high doses of kpin and ativan for a couple years and im close to 8 months out and the waves/vibration are subsiding greatly now. Its felt like the inside of my body was made of lava lamp wax with electricity going thru it and i could always tell how bad the wd would be for the day by how severe the waves from within were. Its the absolute most fd up pysical symptom there is imo. The only physical symptom that compares is from a harcore opiate wd but that only lasts a few days whereas the benzo wd lasts for months.It almost seemed like the entire wd revolved around the vibrational waves. It amplifies any other ailments you may have as well. It feels like an unknown vius ravaging your insides. But you gotta remember that it is benzo wd and it will go away. Mine let up around the 6-7 month mark as did all my sxs. Hope yours noticeably gets better soon.

Thank you for posting about this..... I just started a thread again today about this as I have this really bad but for a really long time....

[[Wi...]]

Ps

I essentially ct so maybe yours will heal quicker then mine has. Im not "healed" but i am 80% better so its definitely bearable now whereas before it was driving me insane.

[[Pl...]]

Ps

I essentially ct so maybe yours will heal quicker then mine has. Im not "healed" but i am 80% better so its definitely bearable now whereas before it was driving me insane.

 

I don't know... I have a long way to go.... And it does drive a person nuts.... And no one can see it

[[Gr...]]

I used to get these inner vibrations where it felt like my spine was quivering, but you couldn't see anything move, and I couldn't feel anything move if I put my hand over that spot. It reminded me of how it felt when I hurt my neck a few years back. I guess all those little nerves and muscles right along the spine got aggravated by the benzo wd. It wasn't severe but it still freaked me out. I found a weighted blanket to be helpful and also heat. Hot baths, heating pads on the main spots. I still sometimes wake up with a little quiver on my upper spine so I lie flat on my back on top of a heating pad for about 15 minutes and then it goes away. I hope some of these can ease thing for you.

[[Da...]]

Thanks for all your replies. This has got to such an extreme for me now that it now feels as if anything I sit on or anything that even makes contact with my body, is boiling. I can't even stand my own husband giving me a hug because it feels like he is boiling too. That's without mentioning the period torture. I've obviously done my CNS some severe damage with the high doses of strange, non-medicine Benzo analogues I was using back last year, and for three years before that, so four years in all. As well as WD I genuinely think some of my health problems are a result of damage as well.

 

I have a theory that GABA behaves slightly differently outside the brain, and whereas levels in the brain eventually return to normal after Benzo use, the receptors in the rest of the body take a lot longer. Either that, or it's because different Benzos impact GABA in slightly different ways. I wonder if some Benzos cause more physical sxs than others, while others cause more mental sxs?. I can't fathom how I've avoided a lot of the mental WD sxs and landed up so ill physically. Maybe the one I was on, Diclazepam, causes more physical problems than others.

 

I am at a loss, nobody apart from me and people here have a clue about this Benzo, and compare it to it's parent structure, Diazepam. It's a different drug with a different name. It was synthesized by Roche yes, but it never made it to become a human medicine. I feel like writing to friggin Roche and asking them why it never became a prescribed Benzo, because maybe that could shed some light onto what it's done to me.

 

I can't carry on like this and have to bring these things up with the doctor. I am also losing sensation in my right arm and leg, my right leg is giving out on me and causing me to stumble and fall over (fell over in the street last week and gashed my side), if I carry on like this I will land up with a myriad of other problems like broken bones on top of everything else, and my poor husband being accused of doing it to me. I am also struggling with my right hand and it feels like I am developing arthritis in my right fingers. I am right sided, but I am having to switch to my left, which is frustrating and confusing.

[[Wi...]]

A friend of mine currently strung out on ativan has done boatloads of Diclazepam when he was in the UK BUT which he cant get anymore but he says its nothing special and he prefers ativan/xanax. He didnt like it because he said he built an immediate tolerance to it vs. other benzos. Ive only done it one time and it seemed like a weak valium to me. I think what is going on is that you are convincing yourself that you have done some irreprable damge but in truth that is nothing but the withdrawal talking to you. I was convinced i was dying and was having organ failure and all other kinds of health issues but now that im a bit further along i can ascertain it was all nothing but the withdrawal fooling me into believing i had all these mysterious health issues. Take my word for it-this is classical withdrawal-believeing you have this mysterious ailment and its not true. Yet the only way you will start to believe this is when your symptoms subside. I know exactly what you mean by the boiling vibrations electrical feeling. I still have it but not as bad as i did for the first 6 months meaning i can finally feel it subside a little bit. Im sorry you are having it so rough but please try to believe me when i say your paranoia is all wd induced. Time will give you relief.

[[Wi...]]

Ps Dapple-i just read some of your prior posts and i too am on 16mg subutex daily

[[Da...]]

Thanks Windwalker. I'm on 8mg Subutex and I wonder if it's agitating my Benzo mess. I've also read a lot of online 'trip reports' about Diclazepam and others saying it's like a weak version of it's parent, Diazepam. This explains why I hit tolerance so fast. I should have started tapering it slowly as soon as I hit tolerance but I had no idea the sxs I was getting were due to tolerance, so my dose shot up to over 70 pills a day. I reckon it was more than that sometimes, it was chaotic. Unlike someone on a scripted Benzo, I had no boundaries or medical intervention. I can't go back to a doctor and say 'look, you put me on this filth, now help me get off it'. Nobody knows a thing about it, and the addiction agency even went as far as to copy/paste part of a Wikipedia article on Diclazepam into my medical notes. Because the Wikipedia article (probably written by someone in the RC/designer drug industry) says Diclazepam's main metabolite, delorazepam, is detectable in urine for '6 days', my appointment with their doctor in October, about three weeks out from my jump, was comparable to what an innocent person facing a military court must feel like. My test was still positive, and my obvious acute WD state was put down as 'obvious signs of ongoing substance misuse'.

 

I am really wondering if I do have other neuro issues apart from WD though, specially things like this vibration issue. I've honestly never come across a description of it as bad as mine is. All I can find about it is it's a side effect of chronic anxiety (I've dealt with anxiety all my life and experienced every single aspect of it in all it's glory and I've never, ever felt anything close to this). Other explanations range from brain tumors to ALS. I have all the sxs a close friend of ours who died from a brain tumor as a result of previous breast cancer, that despite being successfully treated, came back and invaded her brain. She had things like one sided issues, balance problems, eye problems etc. She was gone within 6 months. I don't care if this is the case for me, but if something's going to kill me, I'd like to get acquainted with it before it does. Maybe, as some others have suggested, my reckless Benzo use was covering something else up and now the Benzos have left my body, the something else is emerging.