Not doing well...really afraid

[[da...]]

Hello all.  It is one am. I may laying here after dry heaving in the bathroom again. This has been going on intermittently for the past week. My stomach feels like it is being attacked by bees. I had a banana and applesauce for dinner. I  urinated 6 times on one hour earler this evening, then it all stopped and I felt like a million dollars for one hour with no symptoms. Fell asleep and woke up in hell again with the stomach.  It is amazing how quickly the symptoms change. Do others notice this? I am worried that my current state is not compatible with life for very long. I can't get 1 to 2 hours of sleep per night for a week, and be unable to eat, and urinate out all my water for very long. I am taking zofran to help the nausea. It sometimes works. I honestly don't know how to live like this. I am supposed to be working full time. If I don't, my family can't pay the bills. My wife was crying all night and is overwhelmed.  I see a neurologist tomorrow. I feel like I need to be in the hospital, but not sure what they can do there either. Has anyone else ever been this bad? This is scaring me

[[Fi...]]

"...then it all stopped and I felt like a million dollars for one hour with no symptoms..."

 

That's the line that leapt off the page at me. If there's any glimmer of healing at all then it's a sure sign that healing is taking place.

 

I don't suppose there is any one of us whose symptoms can exactly match any other one of us and in that sense we are all unique. But the overall gist is similar, though.

 

I went through phases of new symptoms that lasted a week or two as well - one of those was "forgetting to breathe", like a waking apnea. Very distressing; I had to breathe "manually" a lot of the time; but it cleared up and faded within a week or two. I suspect we all go through similar, short phases of changeable symptoms, whatever the particular issue is.

 

Lack of sleep is dreadful and very debilitating. I sometimes think that, on its own, it is responsible for quite a sizeable percentage of the slowness of our slow healing. I targeted sleep (paradoxically, with indifference - but that was successful eventually) as a major means of restoring a better overall healing capability. (I also targeted food and increased intake). My attitude was "do every thing you can to serve getting better sleep" and I made that a pro-active priority, rather than just acknowledging it as an everyday 'curse'.

 

Acceptance is particularly hard at times like this - but it is the way to go. Stop struggling with it, let go of the striving. Just stop it. Get onside with your body and support it in whatever way makes sense to you, as much as you can. I found doing those things a big help in pointing myself towards better outcomes.

 

 

All the best