People who recovered 100% but then had a setback

[Guest [sa...]]

What's the reason behind this? Like, someone who is 100% recovered, then they tried some alcohol and they feel symptoms flare-up. Why does this happen? Will people eventually recover from this sensibility to GABAA agonists??

[[Fl...]]

They weren't recovered, they were simply in a long window. Sometimes it takes longer than we think or hope it will.

[[Te...]]

I agree with FG. The CNS can only take so much stress at a time. People realize that they can't overload it too late. It's really easy to want to live life to the fullest, thinking all is well and going through a window of long duration. It's just that no one usually knows how long the wave from overdoing something lasts because they stop posting and disappear. 

[[Fl...]]

I agree with FG. The CNS can only take so much stress at a time. People realize that they can't overload it too late. It's really easy to want to live life to the fullest, thinking all is well and going through a window of long duration. It's just that no one usually knows how long the wave from overdoing something lasts because they stop posting and disappear.

 

I know it is possible to trigger waves but I also firmly believe that it is possible for these late term waves to appear out of nowhere. Of course if we have a "setback" we want to find something to blame, but I would bet that most of the time there either was no real trigger or if something did trigger it, the wave would have eventually happened regardless. It's just the nature of this illness.

[[Te...]]

Yes, that's true, FG. I didn't think of that. It seems that the people who come back posting of a wave after feeling really great were drinking or exercising a lot or took a pill, etc., so I usually end up thinking that their bodies just weren't healed enough to withstand the onslaught.

[[Si...]]

I was feeling great all last year. Drank a bunch of beer at a work Christmas party and then 2 days later I'm back in hell. My worst symptom was insomnia. I didn't miss a single night in all of 2016 until 2 days after that party. Now I'm sleeping about 5 hours every second night. I was falling asleep within 15-20 minutes and saying in a deep sleep all night. Even my wife's alarm at 5:30am wasn't waking me up most mornings. And she likes the snooze button. I can't believe I screwed myself up this bad. I hope I can bet back to that soon. It's now been almost a month since that happened. I'll never drink alcohol again.

[[Te...]]

Oh, Siggy, I'm so sorry!! I think it just means the CNS has more healing to do, not that you can't drink ever again. I hope that full, restful sleep comes to you soon!! 

[[Si...]]

Oh, Siggy, I'm so sorry!! I think it just means the CNS has more healing to do, not that you can't drink ever again. I hope that full, restful sleep comes to you soon!! 

 

Thanks Terry. It's hard to cope with feeling good for so long and then getting knocked back so hard.

[[Te...]]

Yes, it must be really hard. I don't know the feeling myself, although I've had pockets of good feeling. You'll get back there again! Guaranteed!  :thumbsup:

[[Si...]]

Yes, it must be really hard. I don't know the feeling myself, although I've had pockets of good feeling. You'll get back there again! Guaranteed!  :thumbsup:

 

Thanks Terry, I'm hanging on hard trying to believe that.