Burning nerve pain/insomnia at 7.5 months off Clonazepam

[[Su...]]

As months go by just feeling worse.  Trying so hard to distract, but insomnia is around 2-3 hrs sleep now which is less than months before.  Severe burning nerve pain arms/legs/torso and some scalp/brain as soon as awake. Evening use to bring some relief, not now, burning is lower intensity in daytime but still there especially in legs.  Anxiety worse and feeling really down.

 

Don't feel I can express how tormented I feel.  Sorry guys, hard to believe this is going to improve.  Don't see a lot of others experiencing the burning nerve pain.  Are there others out there that can give some encouragement on this particular sxs?

 

Try mindfulness meditation, deep breathing, 1/2 hr walk in day, various things for sleep - melatonin, tart cherry juice but mostly trying to tough it out to allow sleep to return naturally.  Not much success.

 

Feel like I can't handle this mentally as not strong minded or positive enough.  Support please.

 

Sunny

[[bc...]]

Sunny, my dear.....I am so sorry that you are struggling thru this.....but I can so relate to all you are going thru..... as I am going thru the same thing.  My sleep is not as good as it used to be, but the anxiety is brutal.....every morning, every day, all day....I, too, wonder when will this all end.  I have pain in my hands...not sure if it is nerve pain or what....fingers are numb and hands are very sore.  Distraction doesn't seem to help at all and I have tried the deep breathing and nothing seems to budge that awful anxiety.

 

We will get thru this.....I keep reading success stories to get some hope.  Everyday I think things will be better, but they aren't....waiting for that day to come when this is all behind us. 

 

Maybe some others who are further along than we are will chime in as to when their anxiety, pain, left for good.  We sure can use some support and encouragement.

 

So sorry for your suffering.....we will get there.  Praying for us all......sending healing hugs and thoughts your way......

[[er...]]

Hi Sunny,

 

I'm real sorry about that nerve pain.. that must be hard to deal with.. especially on little sleep.  I thought i'd share what i do for sleep.  (I've heard, and believe, that sleep is essential for our CNS to heal, so i take 3 "zzzquils" per night and listen to a sleep hypnosis cd on my ipod.)  I read AA stories in the the AA big book before i try to sleep as well.  I know it's not as natural as possible, but this all allows me to sleep 6-7 hours a night, and i think it's been really beneficial to recovery for me.

 

Hope things get better soon - keep up the good fight! - Eric

[[Su...]]

Thanks for responding bcalm & eric.  Made me cry just to see a response.  I'm sorry you are suffering bcalm and hope something turns around for you soon.  Appreciate your caring.

 

I'm afraid to try the zzzquils only because I'm so sensitive to meds and it was suggested I just try to let it return naturally, but too agree that sleep is essential to healing.

 

Anyone else have their burning nerve pain leave after time?

[[pe...]]

Hi Sunny14,

I have had extremely intense burning in the whole body at 11 months out, with not a part that is not effected. It waxes and wanes in intensity. The burning is deep in the nerves and feels like acid in my whole body. I am extremely hot most of the time with heat coming out of every orifice! Steroid injections over two months ago revved up the wd to the point I don't even recognize them-burning and heat increased in intensity, so did all the head stuff. Sickening.  I had multiple steroid injections last year while still tapering, and now I know that my Klonopin wd is so effected by this. btw- all these treatments were with bad dr. advice. WD is bad enough by itself!!!

Best to you,

pentas

[[Jo...]]

YES.  I am almost 6 months out and the burning/searing pain is bad.  Sometimes ok, sometimes unbearable.  But I've had this for awhile and it can be excruciating.  I can relate to exactly what you're saying.  I'm on the third day of a really bad wave and very beaten down.  I also have some major apathy (depersonalization?) going on.  I really don't care or feel much at the moment.

 

With that said, I do believe things will get better.  Only because mine has been up and down and has hit different parts of my body.  That seems like healing to me.  I'm so sick to death of it and how relentless it is but we have to keep moving forward and not give up.  Keep going. 

 

I take OTC sleeping meds, just an antihistamine actually.  It's the only med that I can take and do ok with.  I still wake a few times during the night but can get some sleep.  I'm with you on the meds too.  I took quite a bit of magnesium a few days ago and had tried to take a couple of walks and I suspect that might've brought on this wave.  I was doing better before this. 

 

It definitely doesn't feel like we can get through this, I totally get that and feel the same way.  But we will.  Our only other option is to go back on benzos (which is sometimes a fleeting fantasy thought for me, I'll be honest), and that won't ever work.  We know too much, we'll end up feeling WAY worse, and we'll have to go through ALL of this again at some point.  I couldn't bear it.  So let's keep on going. 

[[vi...]]

I do not have the nerve pain but my face feels really weird- very tight and I still have kind of a buzzing/rush in my head that is analogous to being hungover or after a party binge.

 

The insomnia is BAD still and I am 4 months and 15 days off of Klonopin now- some nights I maybe sleep 3 hours total. I am going to restart Melatonin once the school year ends ( I am a sub teacher) and I know I will get more sleep.

 

If possible maybe you can try Valerian root? I used to drink Valerian tea and it does help you sleep.

[[Su...]]

Thanks pentas, Jordy and violetsky.  I'm sorry you're all struggling with these distressing symptoms.  Yes, I guess all we can do is tough it out.

 

I bought Valerian root but then learned it hit the same receptors as the benzos so chose not to take.  Pity, as it seems it might make you feel better initially anyway, but maybe research it a bit more.

 

Sunny

[[Si...]]

Hi,

 

I'm almost 7 months out and my anxiety hits the roof. I slept well since mid January and since a week I'm suffering insomnia again. I have no pain but everything and every thought is still so magnified in a negative way! My feelings towards the world are not real yet, still disconnected.

 

Hang on! We will turn a corner soon! Most people do at 8 months or so.

 

 

Simone.

[[Su...]]

Thanks Simone, I hope you're right and that you feel better soon.

 

Last night I had another 2-hr sleep, after taking 0.4 mg of Melatonin and 4 oz of tart cherry juice.  I feel so nauseous right now and scared. I just want some quality sleep and peace. Relentless burning all night.  If I do manage to drop off to sleep it's only a short time and the burning is there as soon as my eyes open.  Don't understand this.  Trying to believe I can continue to handle this for months more but can't really accept in my heart, it seems impossible to do.  It's so painful.  My vision is blurred as eyes are really dry.  Use eye drops but don't help for long.  Was told by eye dr in years past to use Omega 3 fish oil but with this withdrawal I'm afraid to use.

 

Are there BB out there that have had this relentless burning/insomnia leave after using Clonazepam?

[[GR...]]

 

  Hey Sunny

 

      Wish I knew what could help you my dear with that relentless burning and insomnia!

      I have burning mostly in my face and nerve pain/parathesai in arms and back'its a miserable feeling I know.

    The only thing I can suggest is magnesium and,epsom salt baths with lavender essential oil. As far as the insomnia have you tried any homeopathic remedies?

   

    Greta

     

 

 

     

[[do...]]

I have the burning nerve pain and shocks and insomnia too. Just tried melatonin last night for the first time. 1mg. I slept and my sensations are wayyyyy better!

[[Su...]]

Sorry to hear you get the burning Greta. Yes I've tried some homeopathic remedies. Have tried magnesium but didn't do anything, my levels so far are okay as well.  Take the occasional epsom salt bath and they do take the edge off for a bit.  Take tart cherry juice, bananas, oatmeal.

 

Dontforgetme - again sorry you have these symptoms too.  Glad the melatonin helped.  I know it does for me too but not consistently.  Most say to take for a few days then stop and start up again as it can stop working.

 

Sunny