New Symptoms going into eleventh month.

[[TA...]]

Hi Guy's, what a horrendous journey this is, anyone here about ten and a half months out that has the weak feeling , it really is just horrible and started worse a couple of day's ago .had this weak leg feeling awhile but not like this ..really like jelly and my body too , the sensation of pouring sand or fizz in them is here for a long time now but this wobbly legs is different and that feeling of a cold running in the feet or something cold moving in them YUK, when i stand it really is intense,  can anyone relate ...my tummy is swollen still (The Belly), this is really a long awful ride for us all and different things cropping up along the way it is no fun at all, I thought things would be better a little now .they were a little better and i have managed throughout to keep on going even though it was too much at times, the thing is no one who hasn't walked in our shoes could possibly imagine this they really couldn't ,but then could we ,maybe not, it's not much point saying a lot because they think we are being over the top, anyone please chime in here if you can relate at all ...wishing us all healing.x

[[Da...]]

The weight gain is horrible, but not cared to all of the other miserable problems that this nasty drug has created - putting poision in our body every day had to have some impact, I had no idea that it would be this awful -

 

My face is melting and I cant feel my feet, there are a billion cyciadas in my brain, dizzy, and afraid to go outside

 

Best

 

 

[[bl...]]

Hello TASSIE!

 

I'm so sorry you are struggling! I'm not as far out as you but I have experienced those sxs. It is horrendous and so unfair!!

 

I agree with you, people who haven't been thru this do not know. I get told A LOT by people who haven't, that I need to stop being so dramatic! It makes me mad but then again they do not have a clue!! But I know that my pain is real. I honestly wouldn't wish this on my worst enemy if I had one.

 

I hope you get relief soon! Believe that it gets better because it really will!

 

BIG

[[TA...]]

Hi Danhealing and thank you for replying , i feel your pain too i really do because we cannot find any direction in this, there is no short cut for any one person and no different road , all we have is faith hope and each other here really, I am so sorry you have these horrible symptoms ,they are horrendous and i wish you healing soon, i thought i was doing not to bad , i tried to keep my head down ( impossible as it is) and try to push through but oh , there is no let up ,alway's something waiting to swap places with a previous symptom and the windows ,they never seem to open, ii still have that burning face and cold water frequently splashed on it does not ease it of ,but feels good at the moment ...stay strong i hope it eases soon for you , Hugs Tass. :'(

[[TA...]]

Hi Blessed, Thank You for replying and the kind words , isn't this process just unimaginable to those who just do not know , ( if only they did i think we would be their heroes )  It's so true though because sometimes when they don't speak or answer ,you just know what they are thinking, sometimes silence say's more than words ..I don't really say much anymore because people just do not believe us , yes we are dramatic , we overact and exaggerate our symptom's .throughout this i have tried so hard to keep going and everyday i did manage to do things like cooking cleaning a little because no one was going to believe this horror , we couldn't believe it ..i struggled and was exhausted but i tried, it is so very tiring ,unrelenting and painful too, we all are so strong and deserve a medal .this isn't just words it's a fact, .I am sorry you are still going through all this nightmare Blessed, I really hope you get a window and a long one too, .this is the least we all deserve for trying to struggle through something that is someone else's doing,.I wish you healing and hope this nightmare is soon full of open windows for us all .Hugs Tass. :'(

[[lu...]]

Tassie,

9th month for me and hit with fatige and weakness.  The past two days I have jelly legs and feel lIke I could fall asleep standing up. 

My benzo belly had subsided but once again the bloat is back.

I thought it might be allergies.  Wrong.

Just wanted you to know you are not alone.

 

[[Cr...]]

When you say weak, do you almost feel like there is a disconnect from your brain to your movement? Like everything is off and uncoordinated as well?

[[TA...]]

Hi Lukebass, Thank You for replying here and sharing, i am sorry these have returned for you though it's always good to know that we are not alone with returning symptom's, they really do make it harder for us on this road, we just feel like things are finally easing up for us then bang, here they come again or a replacement takes their place,  it's so tiring to have this come back .I hope you soon get window's and healing LB ...Thank You again  Love Tass. 

[[TA...]]

Hi Crazypant's, Thank You for replying here, Yes it's terrible when i stand it's like my leg's are so weak that it takes time for them to be with the rest of me, like they have to catch up ....this feeling is just a weak wobbly sensation, i can't even feel my legs moving with me really only when they get heavy 'or the sensation of cold surging through my feet into the lower part of my legs.    this is so horrible almost like a fizzy hissing but so very weak and jello, i have nausea feeling come back with the heavy headache's and the palpitation's too .......what a horror ride this is........wishing you healing CP.  Love Tass.